Never Giving Up & Never Wanting to: The Guide to Alzheimer's Care
Barry Tutor
(Author)
Description
Like most, I knew about Alzheimer's disease. It causes old people to forget. When my relationship with this disease began, it highlighted how little I knew. Following my widowed mother's Alzheimer's diagnosis, I researched this disease to gain insight about my new role as her caregiver and decision maker. What I learned and experienced during her affliction still left me somewhat unprepared for what was yet to come. Sixteen months following my mother's diagnosis, my dear wife and best friend was diagnosed with early-onset Alzheimer's. Though now I was familiar with this silent killer, my wife's diagnosis set into motion many changes and challenges in our lives. Someone is diagnosed with Alzheimer's every sixty-eight seconds. Currently, Alzheimer's is the only disease in the top-ten causes of death that is on the increase and has no means of prevention and no possible cure. Given these facts, support for those afflicted relies on increasing levels of caregiving as the disease progresses. Let me explain something about this "old folk's disease." Alzheimer's affects more than just parents and grandparents. It is also the disease of siblings, spouses, and children. Alzheimer's forces many families to decide between home versus institutional care. An estimated fifteen million caregivers provide some level of care to the Alzheimer's victims still living at home. No matter what level of care you are providing, the importance of preparation is paramount. Arming yourself with knowledge begins that preparation process. I was unprepared for the roller-coaster ride my life became as the sole caregiver for two Alzheimer's victims. To meet their varied challenges, I adapted and developed multiple techniques for targeted personalized care. If only I knew then what I know now. By sharing my knowledge and experience, I hope to better prepare you for your caregiving journey.
Product Details
Price
$14.66
Publisher
Trafford Publishing
Publish Date
October 04, 2012
Pages
238
Dimensions
6.0 X 0.54 X 9.0 inches | 0.78 pounds
Language
English
Type
Paperback
EAN/UPC
9781466948808
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Become an affiliateAbout the Author
Barry Tutor has spent more than a decade of his life caring for loved ones with Alzheimer's disease. He was the sole caregiver for his mother for about five years before she finally moved into a care facility, where she lived for more than two years before finally succumbing to the disease. His wife, who suffers from Early Onset Alzheimer's, has been struggling for more than twelve years, and Tutor is her sole caregiver. For a while, he was the sole caregiver for both at the same time. Needless to say, Tutor has a lot of firsthand experience with Alzheimer's disease, although he will be the first to tell you that he is no expert. But, because Alzheimer's is such a huge issue-at least five million people in the United States suffer from the disease, for which there is no cure and which always ends in death-Tutor felt compelled to compile his thoughts, experiences, and stories into a book. "Never Giving Up & Never Wanting To" is Tutor's book. This is not any kind of definitive guide to the disease, nor is it even a road map; because the disease is different in every "victim," writing either would be a challenge, even for the most knowledgeable professional. Instead, this book strives to aid anyone who has taken up the mantle of caring for an Alzheimer's patient. There are facts, descriptions of what different symptoms can look like in the real world (and how they can be different between different victims), advice on topics, such as looking at care facilities or what kinds of equipment you may need for home care, and an abundance of personal stories that will inspire you and remind you that you are definitely not alone in this fight. This book is a true labor of love and is sure to be appreciated by anyone who is dealing with Alzheimer's in their family.