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Description
One of the first books to explore the emotional landscape of living with Ehlers-Danlos syndrome from a patient's perspective; a playful story of falling down, getting back up again, and realizing you should have gone to the hospital sooner.
Product Details
Publisher | Red Hen Press |
Publish Date | May 30, 2023 |
Pages | 280 |
Language | English |
Type | |
EAN/UPC | 9781636280974 |
Dimensions | 8.4 X 5.4 X 0.9 inches | 0.6 pounds |
About the Author
Alyssa Graybeal is a queer writer and cartoonist whose work focuses on the emotional
landscape of living with chronic illness and disability, in particular the connective tissue disorder
Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World is
her first memoir and won the 2020 Red Hen Press Nonfiction Book Award. She has a BA from
McGill University and an MLIS from Dalhousie University, and she works as an editor and
writing coach. You can find her online at www.alyssagraybeal.com. She lives in Astoria, Oregon.
landscape of living with chronic illness and disability, in particular the connective tissue disorder
Ehlers-Danlos syndrome. Floppy: Tales of a Genetic Freak of Nature at the End of the World is
her first memoir and won the 2020 Red Hen Press Nonfiction Book Award. She has a BA from
McGill University and an MLIS from Dalhousie University, and she works as an editor and
writing coach. You can find her online at www.alyssagraybeal.com. She lives in Astoria, Oregon.
Reviews
"This is not a tidy story, but in its messiness, Graybeal's book reflects the complexity of life with EDS. Those coming to terms with their own chronic illness or that of a loved one will find this unflinching memoir illuminating." -Rebecca Hopman, Booklist
"In this compelling memoir, debut author and cartoonist Graybeal writes about her life living with chronic pain and her childhood diagnosis of the rare genetic connective tissue disorder called Ehlers-Danlos syndrome." -Bridgette Whitt, Library Journal
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